Due to there inability to teach Chaim I am now home schooling him. The books cost 400 a year which is not bad at all. His meds have been changed every month since September and I am sick of it. They have sent him home weekly and sometimes twice a week. His self esteem will be zero when they finish with him. we have a dining room table and it will do for a desk and I have a cabinet to keep the books in. we can do this in am and I will do house work teach and shop etc in the day.
These kids need reassurance someone to be kind to them. I sensed his teacher did not like him and so could he. I feel for kid with disabilities because they have few or no friends because they are different.
Monday, January 24, 2011
Tuesday, December 14, 2010
NYC
On saturday we went to Nyc it was a really good day for Micah. He really enjoyed the city and really enjoyed his cousin Joyce because like him she is all of short stature. It was a very crowdeed Saturday and we did not get much accomplished. He wanted to see THe Santa display in Macy's but the wait was over two hours. Next was tous r us and he found a game he wanted for his ds but the line again was way to long which brought on the tears. He loved the windowws and the big tree and lego world plus the nintendo store.
We had the best pizza in the world and he found a coke bottle for sale made of metal so this intrigued him.
would love to go again but during the week this time.
We had the best pizza in the world and he found a coke bottle for sale made of metal so this intrigued him.
would love to go again but during the week this time.
Thursday, December 2, 2010
School
Chaim is still out of Ben Franklin for at least this week so as they change his meds I can observe him. He is in first grade at Ben Franklin and is really having a tough time of it. With God all things are possible and He is my Rock presently.
Micah is doing great in school. If only I could get him to bed at night and up in the morning I would be happy. His school work is great he has two subjects to work on but he will make
Darius is doing wonderfully is on the honor roll in 9th grade and is going to be preforming with Kenny Rodgers on the 14th of dec. he will also be a Eagle Scout in may so he is really doing well.
Micah has earned his first badge in scouts and Chaim has in cub scouts so they are on there way also.
Raechele with all her problems is the light of our lives. She is determined and very self efficient. She will make it and I am sure of that. My kids will succeed and they will only be as handicap as I let them be and I will not allow any handicapping condition to stop them from being truly successful in their own right.
I love these kids and wonder at their success everyday. They do not let these challenges in their life ever stop them they all go for the gold and I will fight for their rights to be successful in all things they do.
Micah is doing great in school. If only I could get him to bed at night and up in the morning I would be happy. His school work is great he has two subjects to work on but he will make
Darius is doing wonderfully is on the honor roll in 9th grade and is going to be preforming with Kenny Rodgers on the 14th of dec. he will also be a Eagle Scout in may so he is really doing well.
Micah has earned his first badge in scouts and Chaim has in cub scouts so they are on there way also.
Raechele with all her problems is the light of our lives. She is determined and very self efficient. She will make it and I am sure of that. My kids will succeed and they will only be as handicap as I let them be and I will not allow any handicapping condition to stop them from being truly successful in their own right.
I love these kids and wonder at their success everyday. They do not let these challenges in their life ever stop them they all go for the gold and I will fight for their rights to be successful in all things they do.
Tuesday, November 30, 2010
Now it begins
Chaim is now suspended for 2 days. Before he was brought home for home time out. It is terrible to have adhd a tic disorder,ppd and learning disabilities and be 6 years old and already being suspended from school. What does this do to their self esteem?
Micah went thru this all the time he was at Ben Franklin and because of his issues medical problems he has no close friends at all and he is now in 7th grade. Micah ADHD, Attachment disorder and Anxiety disorder that he would eat the tips of his fingers down to blood. He also is very short and we found out he does not produce the growth hormone so now daily six days out of the week he gets a shot for this. He feel abandoned by his father and his dad's family because when he was little they wanted him but after he turned five they do not take him or visit him and his mother is developmentally delayed so she rarely takes them either. I am their grandmother so they worry that if I die who will want them. It makes me worry also because my three youngest fathers want nothing to do with them. How ever I do and we will make it I am sure. All of the kids have above average intelligence so they have this in their corner.
I worry also and some nights only get 3 to 4 hours sleep because I worry so much. I love my grand kids and would give up my life for them. Daily it is meeting doctor appts social workers etc. Chaim and Micah have their issues and Raechele has her eye problems and her hyper glycemia and her circulation problems to her extremities. These take all my time very seldom do I have time for myself.
Micah went thru this all the time he was at Ben Franklin and because of his issues medical problems he has no close friends at all and he is now in 7th grade. Micah ADHD, Attachment disorder and Anxiety disorder that he would eat the tips of his fingers down to blood. He also is very short and we found out he does not produce the growth hormone so now daily six days out of the week he gets a shot for this. He feel abandoned by his father and his dad's family because when he was little they wanted him but after he turned five they do not take him or visit him and his mother is developmentally delayed so she rarely takes them either. I am their grandmother so they worry that if I die who will want them. It makes me worry also because my three youngest fathers want nothing to do with them. How ever I do and we will make it I am sure. All of the kids have above average intelligence so they have this in their corner.
I worry also and some nights only get 3 to 4 hours sleep because I worry so much. I love my grand kids and would give up my life for them. Daily it is meeting doctor appts social workers etc. Chaim and Micah have their issues and Raechele has her eye problems and her hyper glycemia and her circulation problems to her extremities. These take all my time very seldom do I have time for myself.
Tuesday, October 26, 2010
This is the life
Well Raechele lost her glasses a month ago and so we ordered new ones. This took 2 weeks to get them and low and behold yesterday at school they lost them again. Now she only had them for 2 weeks and boy will I look like an idiot when I call to order another pair.
Because of Raechele's severe eye problems I just called to see if we could get her another appointment and they said not for 2 years. Well that means another year. I am trying to get a vision person into the classroom to see what extra help she will need and so far we are not getting to first base. The doctor who examined her failed to put her on the legally blind registry in NY so now we have to get another eye exam etc. I will pay for it but just wished it was done correctly the first time.
Because of Raechele's severe eye problems I just called to see if we could get her another appointment and they said not for 2 years. Well that means another year. I am trying to get a vision person into the classroom to see what extra help she will need and so far we are not getting to first base. The doctor who examined her failed to put her on the legally blind registry in NY so now we have to get another eye exam etc. I will pay for it but just wished it was done correctly the first time.
Monday, October 25, 2010
LORD PLease Help Me
I am totally wanting to just break down and cry. It is now 8am and Micah is sitting in the front room and not caring he has missed his bus. The Psychiatrist told me let him walk and be responsible for his own actions. It is now 2 minutes after 8 and he is still here looking for a sweat shirt. He has been up since 6:30 and now on purpose missed his bus. All his coats and sweat shirts are at school. Right where he has left them. He makes my life a living hell in the morning.
I hate adhd and abandonment disorder. He has now totally destroyed his 3rd set of beds this year. He is out the door but to where I do not know. If the bus has left he needs to walk to school. He does not like himself and the people who have hurt him so much he says nothing to just takes it out on me. His Dad grandparents took him all the time when he was little right up to when his dad married fatty patty mayonnaise according to Micah his grandparents did not want him after Aunt Anne had her babies and my mom he says only wants her boyfriends or girlfriend whichever it is at the time. I love Micah with all that is in me but it hurts to have to go through this day after day.
I am not rich and he destroys things then I am the one who has to put it back the way it should be. Dad calls and says he will come and of course he is a no show so Micah in pain lashes out at the house and his siblings. I just wish people would understand what they do to their kids when they act in this manner.
I pray each day that I will not only live but remain healthy physically and mentally to raise these kids. Where would they go if my life as it is will cease. Not one of the three youngest have Dad's that want them . Well Chaim's dad is deceased so he can not help that. We all know Michele could never raise them nor is she up to the challenge.
I would love to have a partner to love me help me with the house and the kids but this is very doubtful and no man wants to put up with this or can understand these kids and their needs. I get frustrated because i just can not keep up with all the work it takes to clean this house and with all the things that need to be done.
I need lots of prayers and just encouragement because this is a very difficult task I am undertaking.
I hate adhd and abandonment disorder. He has now totally destroyed his 3rd set of beds this year. He is out the door but to where I do not know. If the bus has left he needs to walk to school. He does not like himself and the people who have hurt him so much he says nothing to just takes it out on me. His Dad grandparents took him all the time when he was little right up to when his dad married fatty patty mayonnaise according to Micah his grandparents did not want him after Aunt Anne had her babies and my mom he says only wants her boyfriends or girlfriend whichever it is at the time. I love Micah with all that is in me but it hurts to have to go through this day after day.
I am not rich and he destroys things then I am the one who has to put it back the way it should be. Dad calls and says he will come and of course he is a no show so Micah in pain lashes out at the house and his siblings. I just wish people would understand what they do to their kids when they act in this manner.
I pray each day that I will not only live but remain healthy physically and mentally to raise these kids. Where would they go if my life as it is will cease. Not one of the three youngest have Dad's that want them . Well Chaim's dad is deceased so he can not help that. We all know Michele could never raise them nor is she up to the challenge.
I would love to have a partner to love me help me with the house and the kids but this is very doubtful and no man wants to put up with this or can understand these kids and their needs. I get frustrated because i just can not keep up with all the work it takes to clean this house and with all the things that need to be done.
I need lots of prayers and just encouragement because this is a very difficult task I am undertaking.
My day begins
MMy day begins usually around 5:00am. I do a load or two of laundry then it is time to get Raechele up for school and dressed. I next have Chaim to get up and try to get him motivated to get ready for school. Then it is 7:00 and time to wake Darius up so he can get out the door. Now it is time for Micah to be awaken. The first call. Meanwhile Raechele's bus has arrived And now it is medication time for Chaim and Micah. Now out the door for Chaim it is 7:20 and Darius has to head out. Now the fun begins because we still are trying to get Micah up and dressed. After an exhausting 25 minutes finally he is off to school.
Now time to clean up the house do the rest of the laundry. Decide to what to cook for supper that they will complain about and not eat.
Now time for all the back up help that come for the kids. If not off to doctor appointments. Wow it is 2:40 and Chaim is home. Now it is 3:05 Raechele and Darius are home. Ok now we will fight over the computer. Start throwing things around. Go out back to the mud hole and track up the house. Yeah now it is suppertime. Do not like this, not hungry do not want to eat. Then it is time for Micah to arrive from TASP and now the three boys fight and argue. Is it 7:30 yep time for Chaim to bathe and Raechele. 8:00 bedtime. for the two little ones.
Micah and chaim still not sleeping and it is now 10pm and I am exhausted and really frustrated. It is now mid nite and all are asleep and I can rest for 5 hours. This is my day.
I have no life because 24 hours a day I am watching kids 7 days a week. Kids with developmental problems are time consuming and no partner out there wants all this fun.
Now time to clean up the house do the rest of the laundry. Decide to what to cook for supper that they will complain about and not eat.
Now time for all the back up help that come for the kids. If not off to doctor appointments. Wow it is 2:40 and Chaim is home. Now it is 3:05 Raechele and Darius are home. Ok now we will fight over the computer. Start throwing things around. Go out back to the mud hole and track up the house. Yeah now it is suppertime. Do not like this, not hungry do not want to eat. Then it is time for Micah to arrive from TASP and now the three boys fight and argue. Is it 7:30 yep time for Chaim to bathe and Raechele. 8:00 bedtime. for the two little ones.
Micah and chaim still not sleeping and it is now 10pm and I am exhausted and really frustrated. It is now mid nite and all are asleep and I can rest for 5 hours. This is my day.
I have no life because 24 hours a day I am watching kids 7 days a week. Kids with developmental problems are time consuming and no partner out there wants all this fun.
Subscribe to:
Posts (Atom)